Based on a true story. Kennedy Hansen is funny, loving, and seems to be a typical child-until she inexplicably begins to fall. It takes years for a diagnosis. juvenile Batten disease, an extremely rare, terrible, and terminal prognosis. There is no cure for Batten disease and after living only sixteen years, Kennedy leaves behind a great legacy of love and friendship. But her story doesn't end at her death-in fact, that's when the miracles really begin.